Family Resources for Managing Life with Dementia During COVID-19
This page is a work in progress and will be updated as the pandemic response plan changes in both North Carolina and the Nation. Our aim is to provide links to credible sources of up to date information and caregiver specific resources to keep you and your loved one living with dementia safe during the developing crisis. For your convenience, we have sorted the information by category:
GENERAL INFORMATION NON EMERGENCY
For general questions (not urgent) about 2019 Novel Coronavirus, about COVID-19 can call the COVID-19 phone line toll-free at 866-462-3821. This helpline is staffed by the North Carolina Poison Control 24 hours a day, 7 days a week. It is important to make sure the information you are getting about COVID-19 is coming directly from reliable sources like the CDC and NCDHHS.
For more information, please visit the CDC’s website at www.cdc.gov/coronavirus and NCDHHS’ website at www.ncdhhs.gov/coronavirus, which will also include future positive COVID-19 test results in North Carolina.
More individualized information
- World Health Organization (WHO) COVID-19 Information —includes infographics and video
- CDC: COVID19 Guidance for Cancer Patients and Survivors
- Information on how to register advanced healthcare directives in the state of North Carolina
- Meet My Loved One — Form families can use to provide information about what matters most to their loved one
- NEW: Advance Care Planning: Health Care Directives from National Institute on Aging
- Veterans Affairs Response to COVID-19 – overview of resources and veteran case count
- Supporting Military and Veteran Caregivers During COVID19 –tip sheet from Elizabeth Dole Foundation—Hidden Heroes Project
- Q&A COVID-19 and Down Syndrome (English)
- Q&A COVID-19 and Down Syndrome (Spanish)
- The Arc: COVID-19 Resources for People with Disabilities –resource compilation from the lends of I/DD, their families, and service providers
- Autism Society-Weekly Update on COVID-19—recorded video and policy highlights specific to autism spectrum needs
- Safeguard Against Disability Discrimination During COVID19—tip sheet from Center for Dignity in Healthcare for People with Disabilities
- Friendship Line — hotline for those 60+ with disabilities offering well check phone calls on an on-going basis
- Tips and Resources for LGBT Elders and those living with HIV—tip sheet from National Resource Center on LBGT Aging/SAGE
NEW — TESTING TOOLS: There are several new digital tools available to help expand testing capacity, streamline contact tracing efforts, and provide members of your community with guidance on how to protect themselves and their families. These tools include:
- Check My Symptoms (www.ncdhhs.gov/symptoms), a public website that allows people to enter their symptoms and determine if they should get tested for COVID-19. If they are recommended to be tested, they will receive a link to a list of nearby testing sites via email or text. Note: The symptom checker is an informational tool to help people determine if they may need to be tested; however it is not a physician order. Testing sites may require their own screening.
- Find My Testing Place (www.ncdhhs.gov/TestingPlace), a public website that allows people to input their county or ZIP code and access a list of nearby testing site locations online.
Explore our new YouTube channel for great tips from Melanie Bunn, our registered nurse and dementia care professional.In this new series, Mondays with Melanie, Melanie covers important topics like:
Melanie also addresses topics like sleep and medication in her earlier videos. Be sure to subscribe to our channel for notification of new videos as they become available.
Another excellent source of video content can be found on Teepa Snow’s YouTube channel
More caregiver tips pertaining to Lewy Body Dementia are available on Pat Snyder’s YouTube Channel
More helpful tips can be found on ABC11’s Caregivers Corner moderated by Nicole Clagett of Transitions Guiding Lights:
- 4 Simple Steps to protect those that are elderly and at risk
- 6 Tips on how to care for seniors while social distancing